Born at-risk, they now say health good Study of adults contrary to usual
medical thinking about premature babies For many premature, severely
underweight babies, life will be filled with challenges.
As these babies
grow up, they are more likely than normal-weight babies to have problems walking,
hearing, speaking and seeing.
They are more likely to need regularly prescribed
medication, special diets, physical therapy, and special educational arrangements.
They are at greater risk for cerebral palsy, asthma and a low
IQ.
But guess what?
These kids grow up to think they're doing just
fine, according to research in this week's edition of the journal Pediatrics.
In
interviews with 130 young adults who were born at normal weight and 143 young
adults who were born weighing between 1.1 pounds and 2.2 pounds, Canadian researchers
found little difference in how the two groups viewed their health-related quality
of life.
Among the low-birth-weight group, 62 percent rated their quality
of life positively, compared with 72 percent of the normal-birth-weight group.
The
findings were greeted with "some skepticism and disbelief," the study
points out. According to the naysayers, the positive responses had to be due to
"denial and self-deception."
Not so, say the study's authors.
The consistency of the positive responses "support the concept that this
is real."
Dr. Diane Langkemp, director of Akron Children's Hospital's
neonatal follow-up clinic, said that she, too, was somewhat surprised by the findings,
mainly because the vast majority of studies on low-birth-weight babies focuses
on their health deficits.
The perspective offered in the new study contains
a valuable lesson for doctors, nurses and therapists.
Said Langkemp: "One
of the key take-away messages here is that there's a difference in how people
perceive their own health compared with how health-care professionals view it."
To
Fran Massoli, though, there's nothing at all surprising about the study's results.
Her
son, Marco, 17, a junior at Archbishop Hoban High School, was born at 25 weeks
weighing 1 pound, 12 ounces. Though the first three months of his life were spent
in the neonatal intensive care unit, he has no long-term disability or ongoing
health problems.
"Although it was a very rocky start for him, he caught
up in strides and has had a very good quality of life," Massoli said. "He's
a typical 17-year-old boy."
The reason for the positive outlook may
simply be a byproduct of personal experiences, the study said.
"Children
born with impairments, such as those in our study, have never known life to be
any different," the study said. "They have adapted to their disabilities
while growing up and perhaps made the necessary adjustments with less conscious
effort."
Massoli, who is a nurse in Children's neurodevelopmental center,
said the kids' focus isn't on their disabilities.
"They're kids,"
she said. "They're resilient. They focus on what they can do and not on the
things they can't do."
The study also found that the demographics of
the two groups, both of which had an average age of 23, were similar:
--Twenty-nine
percent of the low-birth-weight group continued their education past high school,
compared with 30 percent of the normal-birth-weight group.
--Eleven percent
of the the low-birth-weight group were married, compared with 7 percent of the
other group.
--Forty-eight percent of the low-birth-weight group were permanently
employed, compared with 56 percent of the other group. (However, 25 percent of
the low-birth-weight group were still in school, compared with 15 percent of the
other group.)